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Risk
Factors for use in determining eligibility for ongoing Help Me Grow
Services for Infants and Toddlers at Risk
Eligibility
for ongoing Help Me Grow Services for Infants and Toddlers At Risk
means that four or more risk factors are present in the child and/
or family which may interfere with the caregiving, health, or development
of the child.
The Risk Factors are:
-Acute family crisis
-Adolescent
mother (age 20 or younger)
-Asphyxia
-Blood
lead level of 10ug/dL or higher
-Aypical
Infant Behavioral Characteristics- e.g. excessive irritability,
crying or tremulousness, infant is not responsive to usual comforting
measures
-Atypical
or Recurring Accidents involving the child
-Chronic
otitis media
-Chronically
disturbed family interaction, including domestic violence
-Demographic
characteristics- e.g. one or more specific demographic indices that
are typically found to be highly interrelated: families where either
parent has less than a high school education, families where neither
parent is employed, or families where there is only a single parent
-Family
has inadequate health insurance or no health care insurance
-Family
income up to 185 percent of Federal Poverty Guidelines
-Family
medical / genetic history characteristics
-History
of child abuse or neglect, including physical neglect, emotional
neglect, physical abuse and sexual abuse
-Lack
of stable residence, homelessness or dangerous living conditions
-Limited
prenatal care- e.g. four or fewer visits prior to 34th week of pregnancy
or whose prenatal care was not initiated until
the third trimester of pregnancy
-Maternal
prenatal substance abuse
-Parent
has four or more preschool age children-Parent
or primary caregiver with chronic or acute mental illness, developmental
disability or mental retardation
-Parent
or primary caregiver with a developmental history of loss and/ or
abuse
-Parent or primary caregiver with a drug or alcohol dependence
-Parent
or primary caregiver with severe chronic illness
-Parent/Child
separation
-Physical
or social isolation and/or lack of adequate social support
-Serious
concern expressed by a parent or provider regarding a child's development,
parenting style or parent-child interaction (in relation to e.g.
child's physical health status, emotional well being, atypical development).
-Severe
perinatal complications-e.g. prematurity, RDS; does NOT include
very low birthweight
-Severe
prenatal complication-e.g. toxemia, placenta previa, abrupt placenta,
more than one infant in a pregnancy
-Small
for gestational age
-Very
low birthweight (less than 1500 grams)
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Part
C eligibility
Part
C of the Individuals with Disabilities Education Act (IDEA), requires
that states provide services to two groups of infants and toddlers
birth to age three.
- Infants and toddlers who are experiencing a developmental delay
- Infants and toddlers who have a diagnosed medical condition that
has a high probability of resulting in a developmental delay, or
who are "at risk of having substantial developmental delays"
if Part C specialized services and supports are not provided.
A
cautionary note: It is impossible to provide an all inclusive list
of every diagnosis that may qualify an infant or toddler for Part
C services.
Part 1: List of Diagnostic Categories
| 1. |
Genetic syndromes or abnormalities, chromosomal disorders and
malformations (birth defects) click here for examples
|
| 2. |
Severe sensory impairments, including functional hearing and/
or vision loss click here for examples
|
| 3. |
Metabolic disorders (inborn errors or metabolism)
click here for examples
|
| 4.
|
Neurological
disorders:
-Autism Spectrum and other pervasive developmental disorders
(PDD) which are also included as diagnoses within the social-emotional
category
-Disorders of the central nervous system (CNS)
click here for examples
|
| 5.
|
Disorders secondary to congenital or prenatal infections
click here for examples
|
| 6. |
Disorders secondary to toxic substance exposure
click here for examples
|
| 7. |
Social-Emotional Disorders: including autism spectrum, PDD and
severe attachment disorders click here for examples
|
| 8. |
Disorders relating to preterm birth and complications in the
perinatal period. click here for examples
|
Examples for each diagnosic category:
| Category
1 |
Arthrgyroposis,
cleft palate, congenital heart defects with hypoxia, Cornelia
de Lange, craniofacial abnormalities, Cri-du-Chat syndrome,
Down syndrome, fragile X, Klinefelter's syndrome, multiple congenital
malformations, Noonan syndrome, Prader-Willi syndrome, trisomy
13 or 18 |
| Category
2 |
Coloboma
of the eye with functional impairment of vision, congenital
cataract with functional impairment of vision, retinopathy of
prematurity (ROP) with functional impairment of vision, sensorineural
hearing loss, visual impairment (legally blind at 20/200 corrected). |
| Category
3 |
Hunter
syndrome, Hurler-Scheie syndrome, Lesch-Nyhan, Maroteaux-Lamy,
Marquio syndrome, Neiman-Pick disease, San Filippo Tay- Sachs
disease |
| Category
4 |
Autism
spectrum disorders, pervasive developmental disorder (PDD) and
Rett's syndrome, (also classified as social-emotional or behavioral),
cerebral palsy, head or spinal cord injury with residual or
lasting neurological problems, including paralysis; hydrocephalus,
malformation of the central nervous system, malignancy or tumor
of the nervous system, meningitis (bacterial or fungal), muscular
dystrophy, neural tube defects (spina bifida, encephalocele),
seizure disorders/ epilepsy, tuberous sclerosis |
| Category
5 |
autoimmune
deficiency syndrome (AIDS/HIV infection in childhood, congenital
herpes, congenital rubella, congenital toxoplasmosis, cytomegalovirus
(CMV) |
| Category
6 |
elevated
blood levels (>20 mcg/dl blood level requiring chelation)
|
| Category
7 |
autism
spectrum disorders, pervasive developmental disorders (PDD)
and Rett's syndrome, severe detachment disorder, history of
substantiated abuse or neglect with developmental delay, symptoms
of brain injury or non-accidental trauma |
| Category
8 |
birthweight
table
| Extremely
low birthweight ELBW |
under
1,000 g
(less than 2 1/4 lbs) |
Very
low birthweight
VLBW |
under
1,500g
(less than 3 1/3 lbs) |
| Low
birthweight |
under
2,500g
(less than 5 1/2 lbs) |
Disorders
relating to preterm birth and complications in the perinatal
period
-disorders related to preterm birth and low birth weight:
--infants in the ELBW and VLBW category are eligible based
on weight at birth
--infants in the LBW category with at least one of many
complications that occurs during the perinatal period
--slow fetal growth and fetal malnutrition or intrauterine
growth retardation (IGR) |
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