Eligibility for Ongoing
Services



Diagnosis List for
Part C Eligibility




Risk Factors for use in determining eligibility for ongoing Help Me Grow Services for Infants and Toddlers at Risk

Eligibility for ongoing Help Me Grow Services for Infants and Toddlers At Risk means that four or more risk factors are present in the child and/ or family which may interfere with the caregiving, health, or development of the child.

The Risk Factors are:
-Acute family crisis

-Adolescent mother (age 20 or younger)

-Asphyxia

-Blood lead level of 10ug/dL or higher

-Aypical Infant Behavioral Characteristics- e.g. excessive irritability, crying or tremulousness, infant is not responsive to usual comforting measures

-Atypical or Recurring Accidents involving the child

-Chronic otitis media

-Chronically disturbed family interaction, including domestic violence

-Demographic characteristics- e.g. one or more specific demographic indices that are typically found to be highly interrelated: families where either parent has less than a high school education, families where neither parent is employed, or families where there is only a single parent

-Family has inadequate health insurance or no health care insurance

-Family income up to 185 percent of Federal Poverty Guidelines

-Family medical / genetic history characteristics

-History of child abuse or neglect, including physical neglect, emotional neglect, physical abuse and sexual abuse

-Lack of stable residence, homelessness or dangerous living conditions

-Limited prenatal care- e.g. four or fewer visits prior to 34th week of pregnancy or whose prenatal care was not initiated until the third trimester of pregnancy

-Maternal prenatal substance abuse

-Parent has four or more preschool age children-Parent or primary caregiver with chronic or acute mental illness, developmental disability or mental retardation

-Parent or primary caregiver with a developmental history of loss and/ or abuse

-Parent or primary caregiver with a drug or alcohol dependence

-Parent or primary caregiver with severe chronic illness

-Parent/Child separation

-Physical or social isolation and/or lack of adequate social support

-Serious concern expressed by a parent or provider regarding a child's development, parenting style or parent-child interaction (in relation to e.g. child's physical health status, emotional well being, atypical development).

-Severe perinatal complications-e.g. prematurity, RDS; does NOT include very low birthweight

-Severe prenatal complication-e.g. toxemia, placenta previa, abrupt placenta, more than one infant in a pregnancy

-Small for gestational age

-Very low birthweight (less than 1500 grams)

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Part C eligibility

Part C of the Individuals with Disabilities Education Act (IDEA), requires that states provide services to two groups of infants and toddlers birth to age three.

- Infants and toddlers who are experiencing a developmental delay

- Infants and toddlers who have a diagnosed medical condition that has a high probability of resulting in a developmental delay, or who are "at risk of having substantial developmental delays" if Part C specialized services and supports are not provided.

A cautionary note: It is impossible to provide an all inclusive list of every diagnosis that may qualify an infant or toddler for Part C services.

Part 1: List of Diagnostic Categories

1.
Genetic syndromes or abnormalities, chromosomal disorders and malformations (birth defects) click here for examples
2.
Severe sensory impairments, including functional hearing and/ or vision loss click here for examples
3.
Metabolic disorders (inborn errors or metabolism)
click here for examples
4. Neurological disorders:
-Autism Spectrum and other pervasive developmental disorders (PDD) which are also included as diagnoses within the social-emotional category
-Disorders of the central nervous system (CNS)
click here for examples
5.
Disorders secondary to congenital or prenatal infections
click here for examples
6.
Disorders secondary to toxic substance exposure
click here for examples
7.
Social-Emotional Disorders: including autism spectrum, PDD and severe attachment disorders click here for examples
8.
Disorders relating to preterm birth and complications in the perinatal period. click here for examples

Examples for each diagnosic category:


Category 1 Arthrgyroposis, cleft palate, congenital heart defects with hypoxia, Cornelia de Lange, craniofacial abnormalities, Cri-du-Chat syndrome, Down syndrome, fragile X, Klinefelter's syndrome, multiple congenital malformations, Noonan syndrome, Prader-Willi syndrome, trisomy 13 or 18
Category 2 Coloboma of the eye with functional impairment of vision, congenital cataract with functional impairment of vision, retinopathy of prematurity (ROP) with functional impairment of vision, sensorineural hearing loss, visual impairment (legally blind at 20/200 corrected).
Category 3 Hunter syndrome, Hurler-Scheie syndrome, Lesch-Nyhan, Maroteaux-Lamy, Marquio syndrome, Neiman-Pick disease, San Filippo Tay- Sachs disease
Category 4 Autism spectrum disorders, pervasive developmental disorder (PDD) and Rett's syndrome, (also classified as social-emotional or behavioral), cerebral palsy, head or spinal cord injury with residual or lasting neurological problems, including paralysis; hydrocephalus, malformation of the central nervous system, malignancy or tumor of the nervous system, meningitis (bacterial or fungal), muscular dystrophy, neural tube defects (spina bifida, encephalocele), seizure disorders/ epilepsy, tuberous sclerosis
Category 5 autoimmune deficiency syndrome (AIDS/HIV infection in childhood, congenital herpes, congenital rubella, congenital toxoplasmosis, cytomegalovirus (CMV)
Category 6 elevated blood levels (>20 mcg/dl blood level requiring chelation)
Category 7 autism spectrum disorders, pervasive developmental disorders (PDD) and Rett's syndrome, severe detachment disorder, history of substantiated abuse or neglect with developmental delay, symptoms of brain injury or non-accidental trauma
Category 8 birthweight table
Extremely low birthweight ELBW under 1,000 g
(less than 2 1/4 lbs)
Very low birthweight
VLBW
under 1,500g
(less than 3 1/3 lbs)
Low birthweight under 2,500g
(less than 5 1/2 lbs)
Disorders relating to preterm birth and complications in the perinatal period
-disorders related to preterm birth and low birth weight:
--infants in the ELBW and VLBW category are eligible based on weight at birth
--infants in the LBW category with at least one of many complications that occurs during the perinatal period
--slow fetal growth and fetal malnutrition or intrauterine growth retardation (IGR)

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